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Rating: 
Summary: Must read for newly diagnosed and families.
Review: My mother was diagnosed with ALS in January 2001. Unfortunately, it took me 4 months as "Buyer Waiting" to obtain a copy of this book. By the time I received the book, my family and I already felt besieged by the challenges of rapidly advancing bulbar ALS. While I cannot speak for what this book might mean for the ALS patient, I can attest for what it has meant to me as caretaker. As such, I found my time and attention limited to each immediate crisis at hand. Fortunately, the book is arranged in such a way that you can skip around--reading whichever chapter or chapter portion pertains to your current dilemma. Sadly, I lost my Mom on Easter Sunday 2003. Probably, I only read 50 percent of this book before her passing--but that 50% did help me navigate the turbulent challenges of this disease and connect emotionally with my mother on a level that otherwise might not have been possible once she lost her ability to communicate. While this book is not an end-all resource within itself, it is a good place to start for the newly initiated.
Rating:
Summary: Must read for newly diagnosed and families.
Review: My mother was diagnosed with ALS in January 2001. Unfortunately, it took me 4 months as "Buyer Waiting" to obtain a copy of this book. By the time I received the book, my family and I already felt besieged by the challenges of rapidly advancing bulbar ALS. While I cannot speak for what this book might mean for the ALS patient, I can attest for what it has meant to me as caretaker. As such, I found my time and attention limited to each immediate crisis at hand. Fortunately, the book is arranged in such a way that you can skip around--reading whichever chapter or chapter portion pertains to your current dilemma. Sadly, I lost my Mom on Easter Sunday 2003. Probably, I only read 50 percent of this book before her passing--but that 50% did help me navigate the turbulent challenges of this disease and connect emotionally with my mother on a level that otherwise might not have been possible once she lost her ability to communicate. While this book is not an end-all resource within itself, it is a good place to start for the newly initiated.
Rating:
Summary: It's a 5
Review: This book has helped our family tremendously with understanding what is occuring and how to stay ahead of the game dealing with ALS. Ideas shared in the book are practical and helpful. A good read for families dealing with ALS...especially care givers.
Rating:
Summary: It's a 5
Review: This book has helped our family tremendously with understanding what is occuring and how to stay ahead of the game dealing with ALS. Ideas shared in the book are practical and helpful. A good read for families dealing with ALS...especially care givers.
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