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Let Me Hear Your Voice : A Family's Triumph over Autism

Let Me Hear Your Voice : A Family's Triumph over Autism

List Price: $13.95
Your Price: $11.16
Product Info Reviews

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Rating: 2 stars
Summary: Autism is not a "fate worse than death"
Review: This is a well-written and interesting book. Catherine Maurice's devastating criticisms of the fraudulent therapies which attempt to make mothers feel guilty for their children's autism would alone make the book worth reading.

However, I have three major concerns about the book.

The first is that Maurice presents Lovaas/ABA as the only possible option, ignoring the fact that there are other educational methods (such as TEACCH, or the Koegels' modifications of ABA), which also have good scientific evidence backing them.

Secondly, she also ignores the experts who have raised doubts about Lovaas's claim to have effected complete "recoveries" from autism, and who have pointed out that greatly improving a child's level of functioning, while vitally important, is not the same as a "cure". I've seen too many parents who read Maurice's book and immediately start to plan on the basis that after a few years of Lovaas treatment, their child will be completely normal. The overwhelming balance of evidence is that as a rule autistic children grow up to be autistic adults. We (I have high-functioning autism) may grow up to be independent, happy and successful adults, such as Dr. Temple Grandin, but we remain "different", and often experience great stress from the constant pressure placed on us by families and society to be more "normal".

Thirdly, I was worried by the way in which she constantly treats autism as a tragedy and a fate worse than death, and speaks of dragging her children kicking and screaming out of autism, forcing them to be "normal". Autism certainly doesn't make life easy (and I've worked as a volunteer helper with kids with severe autism combined with severe mental retardation, so I know just how difficult it can be), but nonetheless it's also part of who I am, not a "shell" in which there is a normal person hidden away. How would you feel if you found out that your parents viewed who you are as a tragedy to be cured at all costs?

Lovaas/ABA can be a great way of teaching, but I'm worried about people who use it not to teach children but to try to "force" them to be normal. There's a big difference between trying to help someone learn and function better and trying to "fix" them by turning them into someone else completely.

I'd recommend that people who read this should not make it their only book on autism - they should also read a more general account of autism giving information on the condition itself and on various methods of educating autistic children, and also a first-person account such as those written by Dr. Grandin.

Rating: 5 stars
Summary: Engaging and Inspiring
Review: I began my journey into the world of autism when my 3-year-old son was diagnosed with PDD. At the time, you could have fit my knowledge of autism onto the head of a pin. LET ME HEAR YOUR VOICE was one of several books I purchased on Amazon and the first one I read once they arrived.

My son's diagnosis left me utterly devastated. By the time I finished reading this book, I felt someone had turned on the light so I could begin to find my way. I was buoyed by the simple fact that recovery IS possible and this book served as a roadmap for me. I had also purchased Making a Difference: Behavioral Intervention for Autism - also by Catherine Maurice and began my own ABA program at home while awaiting my son's admission into a Special Ed preschool program. By the time my son began school 2 months later, the teachers and therapists were wondering why he'd been diagnosed with PDD as he was markedly different from other PDD kids. Now, less than 2 years later, his score on the CARS is in the non-autistic range.

ABA is not the only treatment or cure and it is not for every child, but I believe it can bring about improvements that otherwise would not occur spontaneously. While the book is a strong advocate of ABA, it is a wonderful book to read for those who are new to the world of Autism. Giving this book as a gift would be one of the most thoughtful things you could ever do. If I had not read this book, it is doubtful I would have acquired the knowledge of autism I now have - this book was a primer for the sort of education I hope NO parent needs, but if they do, LET ME HEAR YOUR VOICE is the place to start.

Rating: 4 stars
Summary: Emotional and Intellectual Introduction to Life with Autism
Review: I found this book heart-rending, inspiring and informative. Maurice describes vividly the pain, terror, hope and confusion that a diagnosis of autism precipitates. She also presents in a clear-eyed way the difficulties of dealing with doctors, the seduction of fake miracle cures, and the continuing difficulties of parenting an autistic child when everyone's suddenly an expert on your kid and how to raise him or her. Maurice is a devout Catholic and described beautifully how religion affected her journey: I found these sections gutsy and inspiring. She does an excellent job providing an introduction to the best-documented treatment for autism, applied behavioral analysis. She also provides resources at the back for setting up programs, getting them paid for etc. Maurice does not make herself out to be perfect in this book: at times she is hot-headed, impatient and a bit of a know-it-all who has to bite back sharp comments. However, this is real life and I am glad she showed her strengths and weaknesses. If the book has any negative, it is that in one chapter Maurice spends a chunk preaching about how people today are not disciplining their kids. Since her oldest kid is only 7 when this book ends, it seems a bit premature to give others advice on the best way to raise children who will lead productive, responsible lives. However, she may be right. In any case, I recommend this book wholeheartedly.

Rating: 3 stars
Summary: For Well Heeled - Well Connected Parents
Review: A well-written heart-gripping story for well heeled and well connected parents of autistic children. The book is about a family who could afford the best nannies, tutors, teachers, doctors, programs etc. Most parents lack the finances and sophistication of the author.

Maurice's book fails to address important issues that most parents must deal with, Special Education in Public Schools, the Individuals with Disabilities Education Act, which is the federal law protecting autistic and other disabled child. Most importantly, the book ignores the Individualized Education Program or IEP and how a parent can work within the public school system to education their child.

If you are a parent of an autistic child, this should NOT be the first book you read. "Behavioral Intervention for Young Children with Autism," which the author edited is a much better choice, if you are looking for help.

This is not a self-help book.

Rating: 5 stars
Summary: A word from one of the "lucky" ones.
Review: As the mother of a daughter who was diagnosed with Autistic Spectrum Disorder just after her second birthday, I felt especially raw when I read this book.

If I hadn't read this book, I may have delayed ABA therapy for my own daughter. My home-based, daycare-based program has shown better results than any other therapy that we had tried before I found out about ABA. Although I have not had heard the words "recovered" or "cured", I have seen a marked improvement in my child's language, behavior and social skills. Her pediatrician remarked that the outstanding progress that we've seen is typical in about 5% of children who are diagnosed with ASD.

Thank goodness for this book. It gave me hope and set me in motion. It showed me that I could use ABA in combination with other ongoing therapies. I didn't need to choose a single path.

I don't have the funds nor the lifestyle of the author. What I do have is a drive to find a way to bring my daughter back into the world of human contact.

Rating: 3 stars
Summary: Offers hope
Review: I found this book gave me much hope for what would otherwise have been a very devastating diagnosis for my 3 yr old son. I only wish the drills were described in more detail and that there was less religion and preaching. A good first read, but very sentimental and at times condescending.

Rating: 5 stars
Summary: With great appreciation to Catherine Maurice
Review: I can not begin to express the amount of appreciation I have towards Catherine Maurice. Many people who have autistic children may read her book and wonder why this woman was deemed lucky enough to save not one, but two of her children from autism. I believe that she was successful not only for completely dedicating herself to her children, but also because of the book she would write for others as well. After finding out that our daughter has PDD our lives changed. If it weren't for Catherine's book, I don't know where I would have found the strength to help our daughter. Although we are greatful that her diagnosis was on the mild end of the spectrum we still had no idea how to help her. She was already in a special ed play group and receiving tons of speech OT and PT. I had never heard of ABA therapy. It was friend of mine who put me in touch with someone who runs an ABA program that I got my first real education in ABA. By some miracle I connected with a two fantastic ABA therapists who was trained by a top professional. My daughter had an immediate connection with her, and in the short six months that have past we have seen a dramatic difference in her behaviors. No two people have the same experiences in life and no two parents will have the same reaction when their child is diagnosed with PDD. What I have learned from this book is that we owe it to our child to pull ourselves together as quick as possible so that we can perhaps foster our own "miracle." Throughout this process I have encountered countless kindred spirits who have intentionally or coincidentally came to our rescue. I do count Catherine Maurice as one of those spirits.

Rating: 2 stars
Summary: Positive plot, negative attitude
Review: I have never lived with an autistic child. I can not speak for those parents who have to somehow cope with their child's disability. I am sure that this book provides some much-needed hope and inspiration to these parents, some of whom have also reviewed this book. However, it bears mentioning that although the plot is positive, the attitudes towards children with autism are not. I believe it is important to note that acceptance of a child no matter how they are is just important as trying to "fix" or "cure" them. This is a point regretfully absent from this book. Although many of the points made in this book are good ones, they are overshadowed by this absence. I thank the author for writing this book that seems to give hope to those who need hope most, but I warn against drawing all of your thoughts and opinions from the words of one other person.

Rating: 5 stars
Summary: I felt like I wasn't alone
Review: I am a mother of an autistic daughter who was diagnosed a few months ago. This book really inspired me not to give up hope! While reading this book, I would be in tears as to how realistic it truely is. How you preceive your own child. How you go through all the stages of defeat, over and over again! and to reading about the most uplifting little spirits who overcome HUGE obsticals over and over again! This book both breaks your heart and heals it. Great book to give as a gift to those who are an important part in a little persons autistic life who just "don't get it" or want to know hands on what you are going through as a parent. I would recommend to anyone who has autism in their life. Be prepared with a tissue box.

Rating: 5 stars
Summary: great portrayel of autism and its treatment
Review: I am entereing a Masters of Occupational Therapy program this fall. I read this book over the summer in hopes of having a better picture of Autism and of ABA therapy. This book gave me just that. ABA jobs are common here and I know that they can help a student. Intervention (especially early on) can change the life of any child with disabilities. This book shows how much it can change the life of a child with Autism.


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