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Rating: Summary: Recommended Review: Delivered in a sympathetic manner, easy to understand, and filled with anecdotes from other parents.
Rating: Summary: Great Book for Parents of Kids with CHD's Review: I loved the question/answer format of this book. It made an overwhelming and complicated topic far more understandable. I wish this book had been available when our son was diagnosed with Transposition of the Great Vessels 12 years ago. We had so many questions, and while the doctors and nurses were super, a resource like this would have been invaluable becuase the questions don't stop when you finally leave the hospital! I'm sure the authors will keep the book as up-to-date as possible, but just know that cutting edge research is improving the methods of diagnosing and treating chd's every day. So, if the treatment protocol your doctor recommends isn't listed, don't panic. You might be benefiting from the latest research! When our son had his surgery, the Arterial Switch operation, which is now standard procedure, was only being done at a handful of hospitals around the country. Kids born with chd's today have a much better outlook thanks to the advances made by research. And, with more research, tomorrow will be even better.
Rating: Summary: Great Book for Parents of Kids with CHD's Review: I loved the question/answer format of this book. It made an overwhelming and complicated topic far more understandable. I wish this book had been available when our son was diagnosed with Transposition of the Great Vessels 12 years ago. We had so many questions, and while the doctors and nurses were super, a resource like this would have been invaluable becuase the questions don't stop when you finally leave the hospital! I'm sure the authors will keep the book as up-to-date as possible, but just know that cutting edge research is improving the methods of diagnosing and treating chd's every day. So, if the treatment protocol your doctor recommends isn't listed, don't panic. You might be benefiting from the latest research! When our son had his surgery, the Arterial Switch operation, which is now standard procedure, was only being done at a handful of hospitals around the country. Kids born with chd's today have a much better outlook thanks to the advances made by research. And, with more research, tomorrow will be even better.
Rating: Summary: The Best Book You Will Ever Buy!! Review: I would recommend this book to anyone with a child that has a congenital heart defect. This book is easy to read and explains anything and everything you need to know about a heart defect. My husband and I searched everywhere for answers. This book answered all our questions. We have a non-profit for congenital heart defects. This is the book we tell all parents to get!!...
Rating: Summary: Excellent Book with Real Q's & A's that are relevant Review: My new born daughter was recently diagnosed with Complex Congential Heart Defects and naturally I wanted to learn as much as I could about the topic. I purchased several related boks through Amazon.com and founf this one to be very relevant and answered lots of appropriate questions for me. I would recommend this book to anyone who would like to learn more about Heart Defects of any type. It is very thorough and covers every defect I am aware of.
Rating: Summary: Excellent Book with Real Q's & A's that are relevant Review: My new born daughter was recently diagnosed with Complex Congential Heart Defects and naturally I wanted to learn as much as I could about the topic. I purchased several related boks through Amazon.com and founf this one to be very relevant and answered lots of appropriate questions for me. I would recommend this book to anyone who would like to learn more about Heart Defects of any type. It is very thorough and covers every defect I am aware of.
Rating: Summary: A Must Read Guide For All Parents Review: My son Noah was diagnosed in-utero with a VSD and at the age of 9 days received his first sonogram and EKG. The VSD closed - confirmed at his 1-year appointment, but was diagnosed with mitral valve stenosis at this same appointment. This book guides one through diagnosis, parental coping, issues/caring for the newly born, answers many of your obvious and not so obvious questions, surgery - what to expect/how to prepare and the likely impact your childs' condition may have on his/her life basis current knowledge. It also is full of annecdotal stories from parents that are going through the same thing you are as well as commentary from pediatric cardiologists. Additionally, there are resources from the internet to camps in the appendicies. No doubt, the book is at times depressing, but it is also enlightening. The undelying message is you need to be prepared for what you and your child are yet to experience and it is a map to guide you in this area
Rating: Summary: Helpful After the Fact Review: Our son having been diagnosed with subaortic stenosis at one and a half left us reeling, and the surgery was moved into at such a fast pace that we did very little to prepare because we had very little time. This book does an adequate job of explaining some things, such as who to call for what when you have a question, advice on how to handle medical professionals, what procedures entail, as well as some statements that make you realize you aren't the only parent in the world that had "that thought" - and there are many of "those thoughts". Helps to make you realize you're not alone in facing CHD. Recommended for pre- and post- surgery.
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