The Camera My Mother Gave Me

Rating:
Summary: Excellent! Someone speaks up!
Review: 'The camera my mother gave me' is a fabulous read about Kaysen's experience with Vestibulitis - a condition that of the vulva that is rarely spoken or written about due to its intimate nature - despite the thousands, perhaps millions of women who suffer from the disease - mostly in silence.

This book is wonderfully written in a sarcastic, witty manner that will appeal not only to people with Vulvar Pain conditions - I'd recommend it to anyone. As a fellow Vestibulitis sufferer, I related to all her experiences, especially her frustrating attempts to find the answers from various health proffesionals who lack the knowledge to treat this terrible condition - mostly due to the lack of research and the wide variety of causes and symptoms.

I must warn all Vesitbulitis/Vulvodynia sufferers NOT to seek the answers from this book!! I made that mistake. I was devasted to find that the book ends with Kaysen calling off her search for the solution and resolving to live with her condition. Although that was a perfectly suitable ending to the book, it is not the answer I was looking for. I refuse to live with this condition and will not give up until I find the cure. So, laugh and cry along with Kaysen, celebrate her courage in writing this book, be encouraged in your efforts to speak up about your condition, but turn instead to support groups for companionship along your journey. I hope more and more women will speak up and demand a better understanding of vulvar pain disorders among the medical community and the public. We need answers!

Thank you Susanna Kaysen!! I hope you are rid of this awful condition!

Rating:
Summary: Vulva, Interrupted - realistic portrayal
Review: As in "Girl, Interrupted," Susanna Kaysen focuses her sharp camera-eye on a reality not often talked about. In "Girl, Interrupted" these realities largely centered around mental illness and definitions of such for women. In "The Camera My Mother Gave Me," the realities are vulvar disorders - causes, treatments, explanations, talking with others about it - and figuring out its meaning.

I liked this book largely because it was a very true story not just about Kaysen's life, but about many women who struggle with a vulvar disorder - be in vestibulitis (as Kaysen has), vulvodynia, lichen sclerosus - even vulvar cancer.

Women with vulvar disorders often wonder if they are alone, why hasn't there been more research in years or in decades (Kaysen and her research and medical colleagues make this point, too) - is this a reflection on mental state? or is there really a physical cause? is it a connection between the two that may exacerbate the terrible lows of the disorder? These are questions that women diagnosed with vulvar disorders grapple with.

It was also fascinating to read this book years after having read "Girl, Interrupted" - and to really empathize with her reaction when she is faced with the prospect of having to take tricyclic antidepressants or an SSRI such as Prozac. Having this thread of her autobiographies gave "The Camera My Mother Gave Me" much added weight.

Rating:
Summary: grateful to Kaysen for sharing
Review: My opinions about Kaysen's books are shaped largely by the fact that I suffer from the same malady this book describes, vulvar vestibulitis, a form of vulvodynia (literally "painful vulva"). It was an overwhelming relief to read this book, to hear another woman talking about her experience with this disorder and facing many of the same challenges I have faced. Among the two largest of these are trying to talk to friends and family about a disorder that few people know about and that very few feel comfortable discussing (how many friends can you talk frankly about your genitals with? think about it) and trying to have an intimate relationship with someone when sex is painful, difficult, or downright impossible.

The book is well-written and very readable. Kaysen even manages to be funny. The novel focuses on Kaysen's personal experience, and does not claim to be a medical guide - this is what makes it an interesting read for anyone, not just those affected with vulvodynia. I disagree with Kaysen's attitudes about potential treatment (she seems to dismiss some things out of hand, in my opinion) but I'm overwhelmingly grateful to her for sharing her experience.

Some statistics say that 15% of women have some form of vulvodynia during the course of their life. If more women with vulvodynia - and more who, like Kaysen, are already in the public eye - would speak out about their experiences, the rest of us would not feel so isolated.

Rating:
Summary: easy to digest medical memoir
Review: This is a lighthearted memoir of Kaysen's struggle with a little-known about medical condition she referred to as vestibulitis and a medical field that still has plenty of research to do. Kaysen's sarcastic sense of humor makes for an easy anf un read and lessens the chance of the reader cringing and putting the book down due to society's discomfort with sensitive subjects like this. Kaysen also doesn't gel over her difficulties with the medical field and her boyfriend accepting that her condition wasn't all in her head and the lack or care of knowledge, which anyone has had to deal with can appreciate.