Children With Spina Bifida: A Parent's Guide (The Special Needs Collection)

Rating:
Summary: "Must" reading for all parents of spina bifida children.
Review: Children With Spina Bifida: A Parent's Guide offers parents and family members the background, guidance, and supported needed to make proactive, informed decisions regarding a child's complex medical needs and other important considerations. Provided is a complete and compassionate overview of the symptoms of spina bifida; prenatal diagnosis; neurosurgery; bowel management; physical therapy, braces, and casts; nurturing an emotionally healthy child; education; causes of spina bifida; working through grief; urological concerns; orthopedic concerns; childhood development; parenting issues; legal rights and insurance. Of special interest is a chapter on adults with spina bifida written by a physician with spina bifida; and a chapter by a by a young woman with spina bifida who writes about her journey toward independence. Children With Spina Bifida: A Parent's Guide is "must" reading for all parents and family members with a child or loved one afflicted by spina bifida.

Rating:
Summary: Must have.
Review: Great help as new parents of a child with SB. Easy to read and well organized.