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The Diving Bell and the Butterfly : A Memoir of Life in Death

The Diving Bell and the Butterfly : A Memoir of Life in Death

List Price: $11.00
Your Price: $8.25
Product Info Reviews

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Rating: 5 stars
Summary: life worth living
Review: In December of 1995, Jean-Dominique Bauby, 43 year old editor in chief of Elle magazine in France, suffered a stroke which severely damaged his brain stem. After several weeks in a coma, he woke to find that he was one of the rare victims of a condition called "locked-in syndrome" or LIS, which had left his mind functioning but his body almost completely paralyzed. In a perverse sense he actually got fairly lucky because, unlike most victims, he was still able to move one eyelid. This allowed him to work out, with a speech therapist, a system of communication which entailed winking as someone slowly read through the alphabet. By using this code, he could painstakingly spell out words, sentences, paragraphs and, finally, this memoir.

The title of the book refers to the metaphors he uses to describe his situation. The physical paralysis leaves him feeling as if he was trapped within a diving bell, as if there is constant pressure pinning his body into immobility. However, at the same time, his mind remains as free as a butterfly and it's flights are as random. In fact, he calls the chapters of this book his "bedridden travel notes" and, indeed, they eloquently relate his journey through memory.

Although Bauby's situation is obviously unique, this book has universal resonance because his condition is itself an apt metaphor for the human condition. It is the essence of Man's dilemma that our infinitely perfectible minds are trapped within such weak containers of flesh and blood. For most of us, at most times, this frustrating dichotomy, between that which makes us godlike and that which makes us mortal, lurks in the background; but the author has it thrust rudely into the foreground, where it necessarily dominates his existence. This makes it all the more remarkable that Bauby is able to "write" about his life with such great humor and generosity of spirit and with so little bitterness.

Public opinion surveys reveal an interesting contrast in modern opinions on the "right to die." Contrary to the accepted wisdom, the so-called right is favored by those who are young and healthy, but opposed by those who are old and sick. The very premise which underlies such a right is the belief that the quality of life experienced by the aged and the ill is so inadequate that they would willingly choose death instead. In fact, the evidence suggests that--despite the anecdotal horror stories with which all of us are familiar--people generally cling to life even in the face of suffering which seems unendurable to the well.

Bauby's book, for all the horror that we naturally feel at his status, is wonderfully optimistic and life affirming. Sure, there are a few moments of well earned self pity, but they are almost completely drowned out by the author's enduring hopes and dreams and memories. Jean-Dominique Bauby died two days after this book was published, but in it's pages, he left behind one of the great testament's to the splendor and majesty of the human spirit. In these times when people tend to complain about the pettiest matters, he reminds us that even when life is genuinely difficult, it is still quite beautiful and invaluable and well worth living.

GRADE: A+

Rating: 5 stars
Summary: Cry for Life
Review: Jean-Dominique Bauby has a sense of humor far greater then any other author I have read, taken from the events that have happened in his life the good, bad, and the hard times. His ability to describe past events and the highlights of his life brings a joy to me. While I read this book I get a sense of what his life was like, the pain he went through, and the joy he experienced. After reading his book I feel that Bauby was a man who was in love with life all the way to the end, and his book can be an inspiration for living to all who read it.

Rating: 4 stars
Summary: Humbling and uplifting.
Review: This short book is easy to read. However, it took an extraordinary effort to write it. Reading it is a humbling and insightful experience. We read of how a man lost all function, except one eyelid. And despite being seemingly imprisoned in a paralyzed body, he still had an active and free mind. Most of the book tells of how he escaped the drudgery of his overall condition and daily routine by traveling the highways of memories within his mind. He not only reflected on life, but continued to live as best as he could. I am thankful that Mr. Bauby shared his experience w/ others. I found it to be humbling, uplifting and humorous reading.

Rating: 3 stars
Summary: Suffocating!
Review: This book was like being underwater.... with no life support. Death was a blessing.

Rating: 5 stars
Summary: A captivating testament to a spirit that could not be broken
Review: At the age of 43, Jean-Dominique Bauby (former editor-in-chief of the French magazine "Elle") suffered a massive stroke that left him almost completely paralyzed. His mind, however, remained intact. A victim of "locked-in syndrome," the only part of his body that he could still move was his left eyelid. Unable to communicate in any other way, he and his therapists devised a system whereby Bauby could blink out what he wanted to say, letter by letter. In this way, he managed to compose his memoir, with his speech therapist carefully transcribing Bauby's coded blinks. The book was published just two days before Bauby's death in 1996.

I became aware of this book when I learned that Johnny Depp will star in a movie of "The Diving Bell and the Butterfly" in 2006 (playing Bauby himself). Intrigued, I decided to read up beforehand. What I discovered was a poignant and inspirational expression of a man with an incredibly strong spirit. Though he expresses frustration and sadness at his condition, Bauby does not wallow in the trap of self-pity. His observations of the world are sharpened and given new perspective as he is forced to deal with paralysis. Bauby is even able to look at elements of his predicament with a wry sense of humor, as in the time a nurse woke him up to ask if he wanted a sleeping pill.

The book is not written as a linear story - in fact, we don't read about the day of Bauby's stroke until near the end - but rather it is a collection of vignettes. In some he offers insights and observations of his daily life in the hospital. In others he reflects on various memories, with both fondness and, at times, regret for missed opportunities. And in still other chapters he shares with us the dreams he has had since his stroke. He also reflects on his last day as a normally functioning person, and on some of the plans he had in his life before - plans that he never got to fulfill. Bauby has dedicated the book to his children, and it is clear that he misses being a regular father.

"The Diving Bell and the Butterfly" is a very easy read, and well worth the time. It is only 132 pages in length, but I can't help imagining just how tedious it must have been for Bauby to blink out even one page, let alone over one hundred. That, and the amazingly beautiful, fluent language in which the book is written has given me an overwhelming respect for this remarkable man. We have here a window into a soul that refused to die, even while trapped within a body that could no longer move. I would heartily recommend this book to anyone, as it sparks in the reader a more complete awareness of the world and a fuller appreciation for the little things in life.

Rating: 5 stars
Summary: The Wonderful is Painstakingly Evident
Review: This could be the only book of its kind. I ran across this 1998 or '99 and read it faster than I read most books. I was enthralled and engaged fully by Bauby's vivid imagination. I wound up raving about this book for years to anyone who would listen.

When all you left is imagination and you are gifted with the ability to describe your visions and dreams, you wind up 'writing' a book like this. The kinds of dreams, hopes and emotions Bauby experiences is so incredibly deep, honest and telling. The gift he leaves the reader is their ability to genuinely feel the alienation and abandonment of the world all while feeling at one with body, mind, earth, life, love and death. The thing that you walk away from, after reading this book, is nothing short of an amazing epiphany.

UPDATE: I saw that Universal announced they will make this into a movie. To top it off, Johnny Depp will be Bauby. It won't be coming out for two years or so, but it will be worth the wait.

Rating: 5 stars
Summary: Stunningly beautiful glimpse into a nightmare.
Review: Wow. This book is beautiful and haunting. You begin the book with the knowledge of Mssr. Bauby's fate. He proceeds to share with us his eloquent and striking observations post-accident. This book is beautifully and concisely written - it's as tight as a drum - and that is a testament more to Bauby's journalistic talents than his impaired condition. An intellectual with a love for opera, music, writing, and food, he comes to life in these pages despite the brevity of the book. We get a decent sense of him prior to his stroke: a man with a full appetite for life. At times, I had to suck in my breath and set the book down to pause, it was so profoundly heartbreaking. He shares with us his deepest, raw thoughts about his daily life, his former lifestyle, his children, the blessings he misses and the pleasures he now looks forward to, as well as the torment he cannot control. A key point, I think, is that throughout the book he sprinkles his persistent sense of humor, and a feeling of hope. It's amazing considering that he is experiencing something we all agree is our worst nightmare. There is no bitterness on these pages, it's more of an honest wistfulness. Like when he says he would have cheerfully killed one of his caretakers for the neglect he suffered at his hands. I will never forget the irony of the photograph from his childhood sent to him by his father; the description of his last day of normal life; the story of Mithra-Grandchamp; the bleakness of his Sundays and how they lend perspective to his other days (and ours); and his trip to smell the French fries. The meaningfulness and importance of the small, everyday events, abilities, and choices we make are cast in a new light after reading this book. But the experience is like having someone open you up and rip out your heart, such is the sympathy we feel for Bauby. In fact, I will likely be haunted by his descriptions of life, both breathtakingly beautiful and immensely sad. What a man. What a book.

Rating: 5 stars
Summary: Great book - quick read.
Review: One of my favorite books of all time! Definitely worth the read! Not a light by the beach book, but a wonderful look at the world from a unique prospective

Rating: 5 stars
Summary: The most beautiful book I've ever read
Review: The Diving Bell and The Butterfly is a dead-on honest book by a man facing an extreme situation unimaginable to most of us, and probably a biggest fear of most of us. Yet Mr. Bauby produces a book (the process of which alone being remarkable) that is beautiful, lyrical and completely without sentimentality. It is my favorite book. I have given many copies to numerous friends and will continue to do so.

Rating: 5 stars
Summary: Superb--Required Reading for the Medical Professional
Review: If you work in the medical profession - this is your required reading assignment.

A must read story. After reading this book I gave it to a man- Bob, who thought he had everything, wonderful family, wealth and social status. A year later he came to me and he said he just read the book the week before---'never got around to reading it.' Well, in just one week he had read it three times. "Humbling and insightful " were just a few of his words. Bob gave the book to another person who he felt needed the 'humbling experience', now I think the book is on its 5th or 6th reader.

A rare glimpse into a mind much of the world has never seen.


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